Hyper Immunoglobulin D syndrome (HIDS): understanding what it is like to live with this rare condition
نویسندگان
چکیده
Patients and methods Fifteen patients with HIDS were recruited across US, Europe and Australia. They completed a 20 page pre-interview questionnaire and an in-depth 90 minute in-home interview. Patient responses were recorded and summarized; for patients with complete data available (n=13), responses were quantified. The topics covered in the interview were symptoms, patient journey, and unmet needs.
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